It has been 16 month's since Dad was diagnosed with ALZ. He didn't want others to know and we have abided by his wishes. But it's becoming much more noticeable. When do you decide to tell others? And how did you do it? A letter to all family members? or call one and ask them to pass it on? Tell friends one at a time? or a letter? I want to share it with others -- for me, so I have someone to talk to about it; but also for Mom and Dad so that people won't bring it up but will just help… read more
I will give you my two cent because I had the same situation I told our family and every close friend in person
Most of our friend could tell right away
And when I told them Richard was present
Once you both come to turns with this awful disease the safer he will be around you and your family and friend
You see now you will have more angles watching over him.
God Bless
If you go to my Family Life pinboard you’ll find the letter I included with our 2009 Christmas cards. S.
We told the family and friends in person 2+ yrs ago but last Xmas I did a summary of hubby's early stage symptoms for our adult children and will do the same this year re changes in the past year. I think a general letter to all family members is best as they can re read it as needed for understanding.
@A myALZteam Member I didn't get to read your Christmas letter until now, so I didn't have benefit of it for writing my own. But I'll probably reference it again before my own Christmas cards this year. My parents and I will be combining our lists and Christmas letters this year. Mom used to write the cards, and Dad wrote the envelopes for much of their married life. Then a few years ago, Dad starting writing the letters because it stressed Mom too much (she's developing anxiety about everything). Now Dad can't write the letters now, so I volunteered. I'm hoping he'll put on the stamps and address labels, so he feels still part of it. Not sure I'll be able to include anything about the ALZ, but we'll see. He doesn't know I sent the letter to family. He still doesn't want others to know about his issues. He's embarrassed by the things he can't do.
Thanks again.
Well, I emailed family yesterday and then posted a few letters today to Dad's siblings that don't have email. They should receive them in two days. I got a few responses to the emails so far with prayers mostly, a little advice, and a note from my niece who basically thanked me for taking care of her granddad and being there for him. She was adopted at age 12 from Kazakhstan. She's mid 20's now. She's always been more mature than her age because of the life she had in K. Made me tearful to get her long-distance love.
Thank you all for sharing you process and stories. That helped.