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Disability And Caring For A Parent With Alzheimer's
A myALZteam Member asked a question 💭

My husband and I are a double disability couple with various medical issues, my dad lives with us and for the past 3 years it has became very stressful to me and effects my health.

Almost 3 weeks ago dad was diagnosed as being in the second stage of Alzheimer's while in hospital (he fell at home n broke his hip). He had a early onset diagnosis from 2017 that i was never made aware of thus 0 medication's have been prescribed to prolong memory or anything.

Now I'm scrambling to figure out what… read more

posted February 1, 2019
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A myALZteam Member

Hi Nyxks....nice to meet you and hope you find the group support and info helpful. I agree with @A myALZteam Member re SW involvement....we are so fortunate to have national health care and , as retired RN, I think you and hubby need to consider a LTC placement for dad. Since you and hubby have health issues having caregivers coming into your home will not allow you to be there for sudden ER trips. Dad will likely need rehab and the negative impact of fracture, surgery and anaesthetic may cause a quicker Alz decline....sending hugs

posted February 1, 2019
A myALZteam Member

Hi Nyks I am 52 and have been dissabled for 9 years. I have Sarcoidosis and COPD and anxiety deprression. I am on 16 Meds and oxygen 24/7. I am able to do more than i used to. Since my husband got ALZ i have had to take care of him alone. Prayer is the answer to how i do it. Somedays i hurt bad the weather dont help but i know i have to take care of him so i do. I also have a caregiver come over for me. My husband is still very active but has to be watched. You can do this one day at a time. Try seeking help from your church or friends. Keep your chin up and God bless you.

posted February 1, 2019
A myALZteam Member

Its so good that you get out. I know how that saves your sanity. Be careful if she wanders though. Will she go outside and get lost when she wanders at night??

posted February 6, 2019
A myALZteam Member

I am my mothers only family left. I take care of her by myself. I do hire a caregiver for Friday and Sat nights so I can get away. It is amazing how much better I feel when I get away. My mother does not sleep much so I never feel good because Im constantly on edge wondering what she is doing. She doesnt do anything she shouldnt but there is always the chance that she might.

posted February 4, 2019
A myALZteam Member

My husband (59with dementia) and me (52) are both on disability. I was actually bedridden for a year but he was still able to do most things then. I am still dealing with on going leg issues and having to go once a week to have my legs wrapped. He is no longer able to drive so I have to drive myself and he must go with me.
I am so sorry you don't really have a support system. That is hard for sure.

posted February 1, 2019

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