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My Husband's Insurance No Longer Covers Namenda XR. I Think That Since He Has Been On It For 6 Years, We Should Just Quit It.

A myALZteam Member asked a question 💭
Tallmadge, OH

His dementia continues to advance. So why keep taking it, especially now since it is costing 5 times as much?

May 18, 2018
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Answer Summary

Members strongly cautioned against stopping Namenda XR abruptly, with one sharing how their mother rapidly declined and lost recognition of... Read more

Members strongly cautioned against stopping Namenda XR abruptly, with one sharing how their mother rapidly declined and lost recognition of family within 30 days of discontinuation, emphasizing the importance of consulting a doctor to taper off safely if needed. Several members offered practical cost-saving alternatives, noting that the original Namenda is now available as generic memantine for around $47 for 90 days at pharmacies like Costco, while clarifying that Namenda XR's generic version may still be pricey and insurance coverage varies. A recurring theme was uncertainty about the medication's effectiveness in advanced stages, with many feeling it helps maintain stability early on but may offer diminishing benefits as the disease progresses, underscoring the need for honest conversations with neurologists about weighing costs, benefits, and quality of life.

A myALZteam Member

For those of you who don't know this. Namenda is now a generic drug. It is called Memantine and cost about $47 for a 90 day supply (10mg) at a place like Costco. So instead of Namenda XR, you could take 2 Memantine a day for a total of 20 mg. One in the morning and one at night. The insurance company most likely covers the generic.

Having said that. I am not a doctor. So you would have to check with your doctor. My mom did take Namenda for 5 years until the time of her death. 10 mg, twice a day. Since her death the drug went generic, so the generic is called memantine.

i would encourage you to talk to your doctor about the potential effects of taking a dementia patient off Namenda XR cold turkey. And if the switch is a good alternative.

Need some help or advice? You can search the Alzheimer's Reading Room Knowledge base at this address ... https://www.alzheimersreadingroom.com/2014/09/a... ... Bob DeMarco

May 25, 2018
A myALZteam Member

My mom was taken off of it and within 30 days she didn’t know us anymore and couldn’t do anything for herself. She was already struggling in those areas but it seems the meds were maintaining her at a certain point. The only good part about taking her off is she no longer cries all the time because she doesn’t remember. It’s all about weighing the pros and cons and a good talk with his dr. My mom wasn’t with me when an ER dr chose to take her off everything and after coming to live with me I found out her primary care dr and neurologist were never told

May 19, 2018
A myALZteam Member

Never, ever take a person off a medication cold Turkey. You need to wean them off slowly.

May 29, 2018
A myALZteam Member

I would explain to the doctor and ask that it be discontinued. He can tell you how to taper the dose.

June 25, 2018
A myALZteam Member

Good advice.

May 30, 2018

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