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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myALZteam Member asked a question 💭
Victoria, TX

I have been the primary caregiver for my 86 yr old father now for three yrs after my mother passed away. I have had a provider coming during the day while I am working but now I am needing assistance at night. This is draining me financially and I know after a few months I no longer will have the funds without taking a loan or something. Has anyone found any government assistance program that helps with paying for in home care? We have tried a nursing home and only lasted 4 days due to his… read more

January 11, 2017
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Answer Summary

Members rallied around someone struggling to afford nighttime in-home care for their father, sharing practical resources including Medicaid... Read more

Members rallied around someone struggling to afford nighttime in-home care for their father, sharing practical resources including Medicaid waivers, Area Agency on Aging support, VA benefits for veterans, Social Security disability, hospice services (which can provide aides, supplies, and nursing care even before end-of-life stages), and county Senior Services programs that offer free weekly caregiving hours. Several members described their own journeys through the system, noting that disability approval can be surprisingly straightforward, that hospice now accepts Alzheimer's patients, and that adult daycare programs with transportation might free up funds for evening help. A recurring theme was the emotional and financial exhaustion of caregiving, the frustration with unhelpful agencies, and the critical importance of asking for help from multiple sources while protecting your own health and well-being in the process.

A myALZteam Member

Have you tried Hospice. They aren't just for "nearing the end". They have aides and nurses to come in and help. They supply diapers, Chuck's, wipes and gloves. Check them out.

January 23, 2017
A myALZteam Member

If he qualifies for Medicaid there is help with Respite, Meals on Wheels, Daycare Centers, Home Health and several other services. Medicaid is very hard to get. I'm not sure if an extended care insurance policy covers Day Sitters. Best wishes to you. My Mom is about Stage 6 and God has blessed me by not having to work. Stay strong,

January 14, 2017
A myALZteam Member

Talk to your local Hospice. They care for Alzheimer patients now.

April 10, 2019
A myALZteam Member

I've discovered that unless they qualify for Medicaid or are a veteran, you have to do private pay. Sitters and Adult Day Centers in my area average $24 per hour. Hope this helps.

March 16, 2017
A myALZteam Member

If you could get him enrolled in a Daycare program, perhaps you could divert some of your funds to evening caregivers? Our community has one that includes lunch and transportation. We had to place Mom in assisted living because I couldn't keep up with it and she refused to move to my home. I slept at night for the first time in a year. Good luck and try to take care of yourself.

March 12, 2017

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