Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Mom Was Diagnosed With Alzheimer Earlier This Year, I Have Not Told Her , Should I?

A myALZteam Member asked a question 💭
Wixom, MI
October 17, 2016
 · 
Reactions

Answer Summary

Members shared deeply divided perspectives on whether to tell a loved one about an Alzheimer's diagnosis, with many emphasizing that the... Read more

Members shared deeply divided perspectives on whether to tell a loved one about an Alzheimer's diagnosis, with many emphasizing that the decision depends on the person's cognitive stage, emotional resilience, and whether disclosure serves a practical purpose like completing legal documents or understanding treatment options. Several members described their own experiences, noting that some patients felt relief knowing why they were struggling while others became distressed or simply forgot the conversation, with one member sharing how her husband said he could feel his mind changing and another explaining that her mother's doctor advised against telling her because it would only cause upset. A recurring theme was the importance of honoring the individual's right to know while also protecting their emotional well-being, with many agreeing that in later stages disclosure often serves no purpose and can add unnecessary pain to an already heartbreaking journey.

A myALZteam Member

I should add that I have told her she has some dementia issues. I myself do not think she has Alzheimer's, she was in the hospital for a liver shunt, got septic shock, was in a induced coma for 10 days, then in a rehab place for 6 weeks, a couple weeks after she went home her furnace failed, she had CO2 poisoning , then she was in the hospital for over a week with a blockage/surgery and back to rehab for 6 more weeks. She also had numerous 'mini strokes' it was after all this that the short term memory loss was noticed and she wa diagnosed. But before this she had no symptoms at all - was living on her own, driving, taking trips, walking 2-3 miles a day. So I am not convinced its Alzheimer's

October 17, 2016
A myALZteam Member

I don’t know about all people but I felt a drastic change in my memory, emotions and sometimes my perceptions. But what really makes me aware is I have tried every memory trick to find my car like taking pictures , linking my space to a letter on the building, talking out loud but I am still standing in a big parking lot totally dismayed and feeling like crying with my keys in my hand. It’s gone from embarrassment to sadness. It reminds me that it won’t be the only thing I will forget in my future. Every time I look at my grandchildren I feel like crying.

May 15, 2021
A myALZteam Member

thank you all - I won't tell her she has alzheimer since I find it hard to believe myself. I started adding turmeric
to her pills last week and I see a major difference in her energy level! she is now attempting to clean her house. But on the downside she also appears to be more argumentative about what she wants to eat.

November 10, 2016
A myALZteam Member

Mom feels everyone at 65 years old gets Alzheimer's. I done correct her.

October 23, 2016
A myALZteam Member

My mom has high cholesterol also, so takes an 81mg aspirin and is now on Lipitor to lower her cholesterol to avoid another stroke or TIA. Her Dr recently added gabapentin to her meds to aid with the discomfort she has felt for years in left arm muscles and left leg muscles. Dr feel can possibly be due to stroke that showed in her imaging 2 years ago to see if she had Alzheimer's. Her results showed Alzheimer's and her memory loss is more from that than the stroke. When I leave her Saturdays for part of the day and have a caregiver come stay at the house I tell her "I'm having someone stay with you to care for the dogs and be here to get your dinner also so I can be out and not be worrying about you". She wants me to enjoy myself so it works for her. This disease makes every case so different. My dad got aggressive during his Alzheimer's and good old Valium in a low dose worked well for him. He unfortunately passed in May but I have learned through my parents and through my work that with each stage as the disease progresses there are meds that can be added, especially with mood and aggression in the later stages. I'm against sleeping pills or strong narcotic meds due to them increasing fall risk but antianxiety meds have helped both dad and mom with the 11-7 timeframe to help them sleep. Hope this has helped. Everyone is different and some meds interfer with other meds so always best to discuss with Dr first. We no longer see the neurologist who initially diagnosed both my parents. The PCP is an internist and geriatrics specialist so are able to provide Alzheimer's care as well.

October 23, 2016

Related content

View All

Why Do I Hear So Many Concerns About Health Care Providers Who Don't Understand The Needs Of Someone With Dementia?

A myALZteam Member asked a question 💭
Highland Village/Lewisville, TX

My Mom Is 87 With Dementia/alzheimer She Needs A New Pacemaker , Should We Have Her Get One

A myALZteam Member asked a question 💭
Manorville, NY

Medication Donepezil 5mg

A myALZteam Member asked a question 💭
Pretoria, ZA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In