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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Bits Of "advice" Do You Wish People Would Stop Telling You?

What Bits Of "advice" Do You Wish People Would Stop Telling You?

A myALZteam Member said:

It's the Alzeimers or he doesn't mean it when Pete has been particularly horrible to me. I know what Alzeimers is. It is a living death for both of us. My husband is disappearing bit by bit in front of my eyes. Our hopes and plans for the future are being eroded bit by bit. If he were any other person I would cut them out of my life and not put up with their mood swings etc etc but he is my life. He is the man I married, my best friend, the man that took me on when I was widowed with a young son. He is the man who has bought my son up to be the husband and father he is now. He is the grandad whose face lights up when he is with our grandchildren. He is everything to us. I wish people would stop seeing a poor dotty old man and see their brother or friend again.
He is still here.

posted about 4 years ago
A myALZteam Member said:

To everyone of you who have had to put your loved one in a care facility, I say JOB WELL DONEπŸ‘. You have done all you could do for them , now it is time for the professionals to take over. I commend all of you for recognising the needs of your loved ones are greater than what we caregivers can handle. So let the stress go, Hold your heads up high. Pat yourself on the back, ( cause you know the family that didn't help ain't going to. ) lol. Start enjoying them each and everytime you visit them, for only God knows the future. I just want to hug.πŸ’Ÿ all of you right now . Sending hugs.πŸ’Ÿ β€πŸ’™πŸ’šπŸ’›πŸ’œπŸ’“πŸ’•πŸ’–πŸ’—πŸ’ŸπŸ’žπŸ’πŸ’˜

posted about 4 years ago
A myALZteam Member said:

JoAnn Walker, take it from someone that actually is in stage 2 Alzheimer's and cannot work. The lady that told you that is absolutely jealous of you. Meditation does very little of anything for it. You will be meditating a lot if you have and don't even realize it. Tell this "lady" where she can and not throw your mother whom I'm assuming you love or loved deeply in your face.
I had an incident this morning happen to me, most morning I wake up early about 5:00 am for a bathroom call. When I get back in bed I put my phone over next to my pillow so that if my son calls I'll hear it. Well it didn't ring, so somehow or way I picked it up about 8:00am and called him. He said good morning pops, how's your day, I preceded to ask him if he had time on his break to stop by an help me find the phone that I'd been looking for it for awhile. He ask me, Pops are you OK and I said yes, he said for me to stay on the line that he would be right here. We talked the whole time, in about 5 minutes I heard someone open the door and I told him that someone was at the door and he hollered it was him coming in with his key. He walked in the bedroom and looked at me with his loving eyes and said, Dad I Love .You. Did you find your phone? I told him no, I laid it by the pillow in case he called me. He looked at me and said Dad, who you on the phone with and I said you, he says dad your phone is in your hand and you are talking to me. Boy was I ever surprised to find that phone. I went to apologize to him for getting him to take off work and come over for something as dumb as that. He said Dad, you were always there for me from the time I was born, don't you think that I should be here for you through anything as long as I can. I gave him one big hug for being there for me and told him I'll love you from now on even more. I'm 72, and live alone, he's 51 and married with a family but still has time to help me look for the phone. Hope this makes someone smile, but it truly happened this morning.

posted about 4 years ago
A myALZteam Member said:

Most people mean well...they don't have a clue!

posted about 4 years ago
A myALZteam Member said:

@A myALZteam Member! So agree with you! We are the ones suffering - just as in death- the partner suffers the loss! As caregivers we are simply providing the day to day care they need to stay safe. The person they were is no longer - " the slow goodbye is real" so sad and a very tough illness to live through and to live with.

posted almost 4 years ago
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