Husband has been on it for years and his decline is noticeable, does it work
Same here, my wife was taking Aricep for dementia, going to neurologists, going to her MD, all of that was useless. We stoped all that nonsense and nothing changed for the worse. Dementia keeps eating the brain slowly and the best you can do is to try to make thing easier for all, adapting to changes and be aware of little changes on the patient so that you can adjust yourself to it.
The physical part is very important,keeping you mobility is paramount, my wife use two motorized pieces of equipment to keep her legs strong, but as time goes by it is noticeable that the stamina and strength diminishes regardless
Of how much you do and that is when you need to come down to the reality you are facing, hard to do but unavoidable, the only thing left is to pray to remain strong under all conditions ( this gets me teary eyes), that is life and you just dance with it till the music stops.
In the University of Tasmania course, “Understanding Dementia” they stated that they help approx. 30% of patients taking it and of those that it helps, on average only see the benefits for about 6 months. I wish I would have been given this information early on as it would have helped in eliminating some medications that were ineffective and reduced the chances of negative reactions to other meds.
She started as a great partner from the beginning, she always found a way to balance my shortcomings. She coined the saying from Niki before it was from Niki, no hesitation from her end and closed with " just do it". Doing , buying, thinking did not need to much review, "just do it", after 52 years it worked very good for us. Her condition requires a lot of new changes, helpful new gadgets, try this or that, simply, just do it and make it work. Tomorrow a Chaplain from Hospice is coming to give her a blessing. One of her famous closings: don't think about it "just do It".
My wife went into a stage of mostly daytime hallucinations, it did not last very long. Somehow they appeared to be pleasant ones, I use to sit next to her and talk to her at the same time and that helped on a smooth flow, she never showed signs of being scared. At no time medications were in the play.
Hallucinations moved on, she entered a new normal of peace and quiet, at this time she is sleeping like 12-14 hrs a day with some open eyes in between. I found that talking acts like magic to calm down situations mentioned by you. Each case is so unique that you simply have to keep learning to deal with it, I find this as a positive challenge to become a better caregiver, when she is sitting quietly, deep in herself and I see her angelical expression, that charges me for the next episode that may not be so wonderful, but I am ready, she is my best friend !