Her community is a blessing. I am worried if we tell her friends she has Alzheimer’s, she may get treated differently. She’s in early stages. On the other hand, she throws screaming fits sometimes, especially if we need to go to an appointment. It would be nice to let people know what’s going on.
I found for myself it's necessary for my neighbors to know of my guys illness. They need to know for when or if he wanders, says inappropriate things, falls and gets hurt. There are many reasons they should know and his safety is the most important reason.
We also live in a 55+ retirement community. I felt it necessary to tell our friends and neighbors, because it was obvious to anyone that my husband had a problem. Everyone has been wonderful and supportive. And living in a community where the majority of residents are 70+, my husband is not alone. Another reason I am glad I told people about his Alzheimer's is for his own peace of mind. The other night we were out to dinner with friends when he had one of his "moments". He didn't realize I was his wife. It was the first time this happened in public.Our friends were shocked, but knew where it was coming from. On the ride home he asked if they knew about his "problem" (he still does not refer to it as his disease). I told him yes and he said "oh, good".
@A myALZteam Member
I think you will make the right decision either way because you deeply care. I am usually on the side of telling folks. You need support, too. If anyone becomes uncomfortable, it will be their issue to handle. It might not be long until you're in the position of needing to explain. Blessings 🙏🙏
I agree with Eileen, mom has been on this journey for 14 years. She was undetectable for the first 10 years.
One day she got lost while driving. It was then that I became her primary caregiver. When I had my new home build with mom in mind. When we moved into the new home, we had a home warming meet and greet the neighbors, it was then mom made her all announcement.
She has declined since that day, but the neighbors are quite aware and very supportive.
There is no shame in having this illness that has fallen upon our loved ones. The neighbors will understand and perhaps very supportive when your mother become detectable by others.
I hope this helps in making your decision, keep strong and hug for you and your mother.
I, too, have been open about my husband’s diagnosis. I have found most people are very understanding.