Yes I can say that there are times when Mark' muscles are like blocks of cement. I have found that if I let him wake up on his own it works out better for us. Hope this helps!

Just would back up Linda’s point. As the disease progresses our schedules and notion of “normal” times become irrelevant to our loved ones. I work on Jackietime, whatever that happens to be on any particular day. As she is now, to do otherwise, particularly with eating, would be dangerous for her.