I too am disappointed in how our kids have responded (or not) to our situation. I just suck it up and stick to the maxim “burn no bridges”. Over the years I’ve spent a good new car’s worth on respite and am happy to have done it. A shame it leaked from the family, but the kids have a right to make their own choices. And I haven’t overcome the disappointment, just learned to live with it.

@A myALZteam Member I feel for your lament. It is one that I had heard of and on my mind.

One of my daughters is a Psychologist 600 km away from us with her partner: a stood-down Virgin pilot.

Our older is daughter is 30 minutes away with 2 young daughters. She has a senior role in a global business, with numerous time zones and much travel. My son-in-law works 2 days a week and is house husband for the other days.

All three provide much needed moral support to my better 7/8th’s. For my part, I’d like that the status quo remained the same. All but 2 sibling on both sides of the families are interstate.

My go-early planning contemplates going into care earlier rather than later such that lives of those around me remains that of their choice. Nevertheless I‘m not in a rush per se!

In the near term I have started to select attendees at my ‘pre-wake’. I thought this idea would get knocked on the head but no, got a green light. I’m not one to miss a good party!

We were in discussion with a venue and then along came COVID-19. Nonetheless, it is still on the agenda. Will not be able put it on my NDIS support.

Looking back at this, it much about me not you ... l’ll put you on the invite list.

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A myALZte...

@A myALZteam Member You were my first reply but must have deleted it. Apologies. My theme was the same as I put to Steve.

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A myALZte...

Interesting and compelling plan for "pre wake" party Rob...hope you and Ms 7/8 are having a good weekend.