Just some thoughts... I don’t know what seizure medicine he is on but very COMMON side effects of Keppra, Depakote, Dilatin, etc. is interference with muscle coordination for walking, balance. I have reduced dosages when my sister slept too much, stopped walking with help, etc. and spoke with the doctor. He agreed on lower doses or tried new type of medicine. My sister has never walked as well since we tried Depakote and I reduced dosage and doctor switched to a different medicine. Since he’s in Hospice you will have to work to get their attention. Seizure drugs are mean!

So sorry Debi0419, this is one of the hardest part of disease to face. Do you have any siblings? Take a deep breath and concentrate on feeling God’s Love! He’s with all his children always! Just seek him! He will help you through this!!❤️

I am so sorry that you did not have support during the time that you were caring for your father. You are an angel for caring for him, please know that!

Thanks for all the support on here. I lost my Dad 4 months ago today. It has been so hard. I know he is not suffering anymore and he is with my mom now. When they say it is the hardest on the caregivers, it is so true. No one offered to help while he was alive to give me a break but after Dad passed, I got accused of everything. They blamed me for him dying saying I did not take care of him. I did everything possible for 5.5 years. I was the one that fed him, bathed him and changed him 3-5 times a day, while they were going about their ways. I could not even be with my husband during his radiation treatments for prostate cancer because dad came first and my husband totally understood. He was right there helping me every chance he could even though he wasn't able. I pray for all the caregivers because I know what you are going through. I know the toll it takes both physically and mentally on the caregiver. We do it because we love our parents, spouses etc.

I forgot to add, she improved enough to be taken off hospice in June.