Once Diagnosed With Mixed Alzhimeras And Dementia How Do I Know What Stage My Mother Is At Is At? | myALZteam

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Once Diagnosed With Mixed Alzhimeras And Dementia How Do I Know What Stage My Mother Is At Is At?
A myALZteam Member asked a question 💭

Mum was diagnosed early last year my Father died in January and this has now highlighters that mum relied on my dad for everyday routine although cares are now involved we are finding that it isn't running smoothly as she is at home on her own Do the doctors are assess every now and then or is this it.

posted May 18, 2018
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A myALZteam Member

Once a patient is diagnosed, they should be monitored at least annually for assessment of possible deterioration.
First the doctor referred us to a Parkinsons consultant, who after a while recognised other symptoms, which she referred back to the GP.
He then referred us to an adult mental health facility, where we attended a Memory Matters course. This was excellent, and very informative regarding a lot of things.
Throughout this time, Bill was still being monitored By the P'sons consultant.

Then the other problems started, like hallucinations, sundowning, violent outbursts, severe memory loss, sleeping up to 20 hrs in the day, and he was sent for a specialist scan which actually showed the damage to the brain.
This is when alzheimers was diagnosed.

We are now monitored by the P'sons consultant, and we have agreed to participate in a 'paper' that is being written on alzheimers, as it progresses, difference in male/female patients , how drugs for alzheimers interact with others.
Many things that may help with treatment in the future. It only takes a half hour every six months for me to fill in the questionnaire.

You may be glad to know that there is a special section In the questionnaire on how it affects carers, mentally and physically, depending on their age etc.
So that was our journey to the present.

At last the answer to the original question is get your illness monitored, both for your sake and your family.
I know it was long winded, but it will give some insight into what can happen.
Our 'journey' to date has taken 10 years.
If there was only one bit of advice to give, it would be to make hay while the sun shines!!!

posted May 20, 2018
A myALZteam Member

What is the memory matters course.

posted November 1, 2019
A myALZteam Member

Grief an be a hard thing to get over and can add to the sadness of being alone. I have found that my Mom seems to be happier and more "herself" when she eats well ( lots fruit and veggies daily) and is getting out and about ( going for groceries, to church, for a walk. It does not ahve to take a lot of time, but the change in her scenery has mad a big difference in her attitude and participation.

posted May 19, 2018

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